Here at the SoPD, we are always seeking feedback from readers to provide better content and more relevant information.
Today’s post is a request for feedback – an exercise in self improvement.
If I have any philosphy in life it is wabi-sabi (侘寂).
In traditional Japanese aesthetics, wabi sabi is a world view centered on appreciating the beauty of impermanence, imperfection, and incompleteness.
Autumn – very wabi sabi. Source: Shelburnemuseum
That said, I see no problem with trying to improve things. And following that line of thought, today’s post is a request for help to make the SoPD less imperfect and less incomplete.
It is very easy in science to get very exciting about the details and fail to see the big picture (a ‘not seeing the forest for the trees’ scenario). Most researchers fall down the rabbit hole of their area of interest and become obsessed with the minutiae. This situation on a science blog, however, can make one blind to what the reader may actually be looking for. Similarly, I have certain ideas about how this blog is developing and where it could be going which may not be the best way to serve the Parkinson’s community.
So in this post, we will review where things on the SoPD currently stand, before then inviting your feedback.
The state of the blog:
Every six months or so, I put up a post asking for feedback/thoughts/suggestions on the style/content of the site. Or requests for any special topics readers would like to read.
In this post, I also try to provide some insight as to how the website is going and what is happening behind the scenes.
The whole point of this particular post is to provide an opportunity to you the reader to help improve the site – any and all suggestions are welcomed.
The State of the Blog address. Source: Tngop
So lets begin with where things are at present.
The state of the blog:
The blog has been running since the 9th September, 2015. There are currently 155 individual posts (64 this year) dealing with all manner of Parkinson’s disease research-related content (for the full list, please see the site map page).
I have had some readers ask about how much traffic is visiting the site on a regular basis and in the interest of full transparency blah-blah-blah: the site is currently receiving about 3,000 visitors per week. Curiously, Mondays receive the most views (approximately 21% of visitors), and 8pm is the busiest time of each day for the site (approximately 12% of views – is nothing on TV on Mondays nights?).
It has been a week since we posted our discussion regarding where we think things are going in 2017 in the world of Parkinson’s disease research. Today’s short post is a follow up piece on how we can improve the SoPD blog.
Specifically, we would like to ask for your thoughts as to what particular improvements you would like to this on this blog.
PPI in action. Source: Parkinson’s UK
Patient and public involvement (PPI)
PPI is a big deal in the world of Parkinson’s research.
It involves researchers and people affected by Parkinson’s disease (both sufferers and carers/family/friends) work in partnership to plan, design, implement, manage, evaluate and disseminate research. It is a win-win situation for everyone involved as it seeks to achieve a more patient-centric approach to the research.
Parkinson’s UK provides lots of very useful information on PPI (Click here to read more).
Here at SoPD, we see great value in PPI and we would like to embrace it by asking for your feedback on what we are doing here.
It is very easy in science to get very exciting about the details and fail to see the big picture (a ‘not seeing the forest for the trees’ scenario). This situation can make us blind to what the reader of this blog may be looking for. Similarly, we have certain ideas about how this blog is developing and where it could be going which may not be the best way to serve the Parkinson’s community.
So in this post, we will review where things at the SoPD currently stand, and then what future plans are being developed, before we then invite your feedback.
The State of the Union address. Source: Tngop
So lets begin with where we are at present.
The state of the blog:
The blog has been running since the 9th Sept, 2015. We currently have 90 posts dealing with all manner of Parkinson’s disease research-related content. If you are interested in a particular topic, you can use our site map page to search for key words across all of those post.
The post are usually focused around a particular topic, recent research publication, or clinical trial. We try to provide an easy to understand background on the topic before delving into what new discovery or result has been announced. At the end of each post, we try to sum up what it all means for the Parkinson’s community.
For shorter and more regular updates, we also have a twitter account that you can follow.
In this new year, we are planning to:
- add more pages to our menu bar dealing with key aspects of Parkinson’s disease (such as “what is a Lewy body?”)
- encourage great involvement and participation in Parkinson’s research
- put some videos on the site which will explain some of the more commonly asked questions regarding Parkinson’s disease.
There are some other ideas, but these are the ones we are prepared to put on paper and be held to.
And this brings us to your feedback.
What improvements can we make?
We are seeking feedback here – either in the comments section below or by contacting us directly by email – regarding what features or changes you would like to see on this blog.
- what could we improve or do better that we currently do on the blog?
- what new features could we add?
- are there alternative ways of bringing the same information to you that would be better/easier for you to consume?
Any and all thoughts would be greatly appreciated. Please help us to improve the service we are providing.
We look forward to hearing from you.
The team at SoPD
The banner for today’s post was sourced from OnthecontraryKelly